Dystonia & Movement Disorders, (Affected by Occipital and Cranial Issues)


Well into my 12th year battling TMJ-Playtysma Dystonia and having been passionately commuted to weekly research regarding recovering from this devastating and debilitating condition which has so diminished the quality of my life. My daily devotions to the Lord and in my prayer time, I have sought His wisdom, revelation and understanding of the extremely complicated structure of my cranial and Occipital area, (which I had never even heard of a year ago! I’m very grateful to my TMJ doctor, Dr Jeffrey Brown, who introduced me to the complicated anatomy of the jaw, spine, neck and cranial area, all of which  and neck are the severely dysfunctional areas of Cervical Dystonia sufferers.

I’m learning that besides mechanical dysfunctions  of the spine and cranial bones , other factors such as toxic bowels, liver, kidneys and  colon can also contribute to bodily sluggishness and toxicity., (including brain fog and depression). Because our water, air and the environment, are loaded with toxins and chemicals, we must have a triple-pronged detoxification regimen.  Our recovery-cleansing process will entail hard work,  dedication to exercise disciplines, etc. For some of us, (as in my case ,  having a mercury and mold sensitivity, has become ) the process may be very long and discouraging, but we will succeed through diligent  discipline and prayer.

I am just a passionate student of anatomy, medicine and natural healing, but whatever I have learned along the way, I am blessed to share for many who do not have the finances to afford  several holistic practitioners who often charge very high fees fir their services. For those of you who do not have the finances, I suggest doing extensive research first, study your anatomy, be informed about your condition, so that when you have some idea of teh area which is afflicted, you can connect with the right doctor. Mark and I have wasted thousands of doctors of MDs who we were incorrectly referred to who confirmed that they were not the specialist we needed. Had I known more about cervical, Occipital and jaw anatomy 12 years ago, I would have first gone to a TMJ specialists and saved eight thousand dollars! Study your anatomy and know your body.

After many desperate years researching the reason for the violent neck, throat and jaw spasms. This section entails various chiropractic You tube videos. I came upon an amazing and greatly-informed chiropractor, Dr Mandell who is intent upon sharing his  expertise with all who are suffering.  He really is amazing and also educates us TMJ and Dystonia sufferers  with exercises to address or misalignment. I believe Dr Mandel’s exercises will help many!  His anatomy pictures are even better than my Grey’s anatomy diagrams.

Resorting mobility in the Occipital area:

Vertigo  and Tinnitus sufferers will benefit from this exercise. The Occipital area could be affected:

This next video is a video about the SCM (Sternocleidomastoid)  muscle . Much of my distress involves this SCM and the Platysma muscle. This dysfunction can be related to poor posture and  sitting at a computer all day.

For those of you who suffer from jaw issues, here is a very informative video from my TMJ Doctor, Dr Jeffrey Bron and he is  a very compassionate and knowledgeable doctor. I highly recommend him if you have TMJ.

I met Gustav Grundsoe on the Facebook Curalistic group.  Gustav invited me to his special group of TMJ people. Gustav is  gentle, compassionate and  passionate about helping people suffering from accidents or injuries recover to  their full lives again. Gustav has an amazing track record of helping so many people heal from whiplash and TMJ issues that he has his own website beside his  very popular Facebook page!

http://curalistic.org/http://curalistic.org/

Here is Gustav’s video about trigger points relating to whiplash and stress:

 

 

 

 

 

KILLING US SOFTLY, (Science, Medicine & Prayer)


 

 

Prayer, Science and Medicine

For the many of you who follow me, (and my Dystonia Journey to healing),  You know  how passionate I am about everyone living up to their God-given potential.  I feel a great responsibility to maintain forward momentum for myself and others ,through the outreach-productions non-profit company of Brave Flame.  I knew that God had done  something special and provocative when he connected me to my lead guitarist Chris Durante and we fronted our Christina hard rock outfit, The Promise. I have to mention Chris, first because we have both weathered decades of hardships and health illnesses. Both of us battled Lyme disease., (which also was the catalyst to live pure lifestyles, including, fasting, FAR sauna sessions for detoxifying,, organic-vegetarian diet, juicing,   daily exercise and prayer).  Lyme has no longer been  an issue for Chris and I, but  since 2007, I’ve waged a  daunting battle with  facial (TMJ-Platysma) Dystonia and Chris has been recuperating for from a serious hand injury. Any type of hand injury is a staggering  issue for  lead guitarists and Chris and i have had many talks  about keeping the faith and knowing that Christ is the only way to complete healing and  recovery.

That all being, my quest for answers to the greatly debilitating mystery neurological issue I face has led me to some very pertinent information, thanks to my husband, Mark.  He fell upon an amazing documentary 5G Apocalypse-The Extinction Event,  produced by Sasha Stone. It was extremely well researched and put together and  it would greatly behoove every  person alive if they wish to keep their health and sanity.. As  of today,  Wednesday, April 2019, (the documentary was published on April  5, 2019)  an unprecedented  791, 656 people have viewed this film. Sasha Stone has something to say..and we’d better listen.

The subject of 5G and its effects on the human body, (and ways to counteract or reverse the damaging  effects), will become the next big quest for holistic-natural  healers and passionate health-nuts. I for one was so intrigued by the innate workings of  WIFI, technology etc,  that I found several other extremely informative videos. One particularly informative  video is Dr Mercola interviewing. Martin Pall.

 

“This industry, the telecommunications industry is well-funded and perhaps even       more well-funded than the pharmaceutical industry who do a very effective job of      lobbying federal legislatures and connecting with the media to  give their misinformation that only supports their position.  Any researcher who comes up  with opposing views is discredited.and they are defunded”.  quote by Dr Mercola.

Is astounding that  such serious dangers of EMF, pathogens and technological-environmental assaults, every effort is made to keep the public in the dark, even to the point of silencing the voices of the whistle blowers. Many whistle blowers and natural-holistic doctors have bere  murdered in Europe. Suazanne Somers beloved natural physician also was killed for his natural treatments.  The orthodox medical community and  Big Pharma do not want these people interfering with their  cash flow.

This next video is about Dr Elizabeth Plourde discussing the effects of Emf and radiation poising. She has also suffered from mercury poisoning from her dental amalgam fillings.

 

 

 

Another very insightful and helpful video from Anthony DiClementi on how to protect yourself from EMF, WIFI and Cell phones.”

On thing for sure the  Cabal is intent upon perpetuating their agenda to weaken the population with whatever means possible and they are succeeding with a much-pronged strategy: contaminating the air, the water and the food.. As an intercessor standing in the  gap at the wall with my other intercessor brethren,  we see this and are actively opposing. Though the enemies puppets are powerful and well-financed, no one can come against almighty  Creator of the Universe, Jehovah God and Jesus Christ. We intercessors know that are battle is not against flesh and blood, (against physical  armament) but against spiritual forces in the Heavenly realms.  Because of Christ, we can be assured that God will shield those who are his own and give us assistance with His heavenly angels. We can confidently approach his throne room of grace in our time of need. and we are desperately in need of wisdom as we face this demonic flood of assaults on our  bodies, minds and spirits.  God has promised us in His word, that he is a buckler and a shield and we must not despair or be frightened. Those who call upon the name of the lord shall be saved.

This all being said we will be using our most powerful weapon, anointed prayer to keep our loved ones and ourselves safe.  If you are new to my posts and you have been distressed and anxious about all the chaos going on in the world, I highly suggest you read my blog, Prayer, The Double-Edged sword. More so, consider to ask Jesus Christ to be the Lord and Savior of your life starting at the Gospel of John. Here, you will find your hope, sanctuary and everlasting strength. Let Him be your All in all as we face these perilous time!  God bless you, my friend.

 

 

 

 

 

 

FELLING the GIANT, Pt 2


 

 

 

 

In my Felling the Giant post (Pt 1), I gave instruction, advice and suggestions for healing and support of the  physical man. When I first was diagnosed with Lynne in 1992, it was a frightening death sentence because I’d heard that people became disabled and even died.  Disability was not an option for me because God had already ordained me to participate and fulfill leadership roles in many social-outreach  capacities.  Seeing so many manifestations of His miraculous provision and healing, I refuse to believe the lies and doctors reports that I would be one of the Lyme Statistics, disabled and non-productive.

On Saturday, our usual Sabbath of rest, I participate on our intercessors conference call, but today, I felt a strong impression to research the topic of transferring of spirits .During our conference line meetings, some of the fellow prayer warriors shared their frustrations of family and relatives  emotional state very strongly influencing the atmosphere . I sought a pastors teaching on YouTube and found one from Omega Man radio. Pastor Ivory Hopkins was teaching about the transference of spirits. He kept reiterating that Life and death is in the power of the tongue. Prov. 18:21

Now, most of us are all too familiar with this verse and have declared it many times, but today, I believe I received a revelation of how all-encompassing this verse is to our perspective of victorious living.  A mature child of God,  walking fully in his glorious identity will testify of the relevancy of his tongue fruits influence both in the physical realm, but especially in the spiritual.

I used the be the Murphy’s Law girl,  “that anything that can go wrong will go wrong..” That it was . All kinds of crazy and difficult things happened to me til after I  accepted Christ in 1983. Then, I became a new creation! 2 Cor 5:17. So, I no longer declared, nor did I act as I did, a reprobate who was a walking curse.. Now, I did have to appropriate that new identity in Christ because even though my sins were forgiven and cleansed through Christ’s sacrificial blood, our nemesis  Satan, (the accuser), still could dictate to my life that I was still a sinner and unclean. Remember! We are now the righteousness of Christ.  2 Cor.  5:21

If we are a new creation, than we must stop speaking death and lack over our lives. I am sick. I am getting worse. The doctor’s report says i have stage 4 Cancer.  I Can’t do this. I’m a failure. These declarations and many others we often say even without realizing their power are contrary to what God says we are and can do.

Life and death is in the power of the tongue.  Here are the definitions of power according to the dictionary.

  1.  the ability to do something or act in a particular way, especially as a faculty or quality.

    2. the capacity or ability to direct or influence the behavior of others or the course of events. 

  1. supply (a device) with mechanical or electrical energy.
    2. move or travel with great speed or force.

So we see power is a word of force and great action!

Pastor Ivory shared a powerful sermon on the spies who were sent out to spy the land and only two,  Joshua and Caleb, ( who in fact had different spirits)  and had a declaration that was pleasing to God.

  “And Caleb stilled the people before Moses, and said, Let us go up at once, and possess it; for we are well able to overcome it.” Num 13:30 

Whose report do we believe and declare….God’s or the doctors.? Or our parents, classmates, spouses, bosses’ co-workers, neighbors.? It is time we walk as the Kings and Priests our Heavenly Father has called us and (adopted  us) into. We are called out of darkness into His marvelous light. That is something we should be excited about and share with others through our testimony!

Satan has approached, (and continues to do so) the altars of the Holy courtroom a myriad of times with the other sons of God to  accuse, lie and challenge God about our reputation.. Many of us have no idea what happens in the spiritual realm.  The real battle is in the spiritual realm and can only be fought with spiritual armament.  My blog, Prayer, The Double-Edged Sword, is a powerful study on the superiority and power of prayer infused with God’s living word! I beat Lyme Disease, Carbon Monoxide Poisoning as well as clinical depression and  Bulemia. The past 12 years I am battling a war against this neurological disorder, Dystonia and I will win!

We, (my fellow brethren on the Facebook Christian Lyme Disease groups and the Facebook Dystonia groups) often  share tour frustrations and deep grief about tour debilitating symptoms, the medications  (that often don’t offer relief)  that have to be taken, and the isolation and strained family relationships we endure. I give Glory to Father God that he has been my Jehovah Jireh (Provider) who sees my need for family, friendship and fellowship and has blessed me with a handful of precious prayer warriors who have filled that need for prayer, support and understanding.  God is also my Jehovah Raphha, (my healer) and as He as supplied me with the spiritual endurance, faith and hope (expectation of my healing), even though expectancy is one of my weaker issues.  If I relentlessly pursue His face and presence with confident declaration of His word, I will also beat this staggering giant!

How do I fell this giant, Dystonia?  And how do you  fell your Lyme, Cancer, Autism,  Diabetes, COPD, etc? Many of you opt for Disability or every treatment the doctor orders. That is your option.  Isn’t God good to allow us free choice to make our own destiny? But for me and my house we will serve the Lord and His word says :

 I shall not die, but live, and declare the works of the Lord. Psalm 118:17

For we are God’s handiwork, created in Christ Jesus to do good works, which God  prepared in advance for us to do. Eph.  2:10 NLT

Of course God can use the bed-ridden and the wheelchair-bound. Look how He has gloriously used Joni Earekson Tada! But I prefer to be on my feet and energetic and I will beat this Dystonia and fulfill  the greatest things Father has ordained for me which are written in my book of Life. It really is up to me.  I have my daily declarations which I declare out loud, particularly,

And I overcame him by the blood of the Lamb, and by the word of my testimony; and I loved no my lives unto the death.   Rev. 12:11

AS a closing note, I wish to remind you that satan is so cunning, having had eons to study us.  He uses every trick in the book and will use every option, open door, deeply-obscured generational iniquity from our distant  ancestors  or toe-hold to   diminish  our kingdom service, spiritual and physical well-being. I was surprised to hear of Pastor Ivory sharing the story of a cheating  husband. Because of his  adultery, satan was able to gain access and attack the wife. The Bible says that the two become one flesh, so though unfair, Satan will and does attacks us through the disobedience or sin of our spouse, children or dead relatives, (ungodly soul-ties).

There are unseen aspects and barriers to our healing which we will have to diligently seek and ask Holy Spirit to lead us to a anointed deliverance counselor.  I believe many stubborn cases of non healing is due to ancestral generational curses and/or witchcraft attacks. Pastor derrik Prince gave an excellent teaches of barriers to our healing. It would behoove us to listen, learn, pray and apply powerful principles to our daily walking (and soaring) with Christ!

 

 

 

Prayer: Heavenly Father, Thank you for Your precious Son, Yashuah Jesus, who already paid the penalty  for our healing and sins on the cross. Tetelestai, He said it is finished! We ask Holy Spirit that you lead us into all revelation,  understanding  and wisdom of  things unseen, so we can walk in freedom and victory. We thank you for your deliverance, In Jesus name, amen.

 

 

 

 

 

 

 

 

 

 

THE DEADLY CONSEQUENCES, (Of Improperly Removed Mercury Amalgam Fillings)


My Tragic Story of a Dental Filling Gone Rogue October 2018

It is a beautiful fall day and I’m sitting in my room waiting for this itchy Bentonite clay to dry, so I can wash it off and move forward with my day. You may ask, why do I have clay on my face? Bentonite clay is known to remove toxins, so since I’m desperate to get this mercury out of my face, my clay application has been a part of my detoxing routine. After almost of decade of enduring tormenting, uncontrollable spasms of my throat muscles, (Platysma) and jaws. I have been on a relenting quest to solve this neurological mystery. Only just a few months ago, I found a medical journal link about an Asian woman who had the same issue as I. Imagine it taking that long to assure myself I wasn’t crazy and there had to be someone else, somewhere on this planet with a condition as mine! This lady’s solution was surgery.

So each week, I spent innumerable hours researching on the internet, anatomy photos of the face, neck and area, as well as researching everything I could find about TMJ, Dystonia and other movement disorders.

I’ve decided to write a comprehensive article on my condition which was caused by Mercury poisoning from one improperly removed amalgam filling. My misery has been so extensive and my life so drastically affected by this horrific phenomenon, that I vow to share with everyone I can so they don’t have endure the hell I’ve been through for over 11 years.

I feel it nesseasary,  as an ordained minister and journalist to make available any information that leads to wholeness and wellness. Many have no idea how toxic mercury is to the human body. Mercury is a deadly substance and yet dentists continue to fill the teeth of children and adults with it.

My husband and I were serious natural health people and we had read health articles about mercury amalgam fillings, so we decided to go to the local dentist ion our town. Today, we are regretful for our ignorance about what kind of dentist should do such a serious thing as amalgam removal. Just my one molar filling caused incredible damage and my life was turned upside down. I suffered relentless and unimaginable pain, isolation and impaired physical bodily functions.

This TMJ-Dystonia affliction also plunged my husband and I into a six thousand dollar debt for detox treatments. Our environmental MD, Dr. Rasa, trained in Dr. Klinghaddts mercury detoxifying program, was very concerned and compassionate when she saw me. She had never seen such intense symptoms in a metal-mercury issue. She did everything she could with no results.

I suffered a myriad of symptoms all relating to the compressed nerves intertwining in that jaw joint area. I had blurred vision when in certain positions, spastic tongue, (and also biting on my tongue so hard, I bled for half an hour and had excruciating pain). My masseter muscles, (chewing muscle) made me clench so hard, I cracked a back molar and had to get a crown. Other times, my mouth would open so wide, I could feel the hard tension and it hurt!

When lying in bed on my side, trying to sleep my sinuses would clog up and I could only breathe through my mouth. Most of the time, my vision is slightly blurred, but when I lay on my stomach, I can read the finest print and even see clearly the hole of the tiniest bead.  (One day, I was repairing a damaged beaded necklace and found that in my focusing on the beadwork, my throat and jaw muscles relaxed)! It was glorious to now get a respite from the tormenting and distracting pulling of my platysma muscles.

My symptoms were so distracting, troublesome and often so painful, I would have certainly had suicidal tendencies were it not for my intimate relationship with my Heavenly Father and Jesus. At the end of each day, I could wait to be entirely unconscious so I could enjoy some peace. It was a struggle every day to not speak death or negativity upon my coming into consciousness. My immediate thoughts would be, “I don’t want to have to go through another day again suffering this torment”. The average person without the Lord would ask for death. I also was getting more adept at praying fervent and victorious prayers to my Heavenly Father for strength and grace not to go insane with the pain. Without God also, I would be as mean as a snake because of my pain and discomfort. It is incredibly difficult living with a movement disorder. For me, there is no relief and no cure, (except for God). I minister to many Facebook Dystonia (and Lyme disease people), having also suffered from this vicious ailment). They suffer with isolation, damaged marriages and family lives and being unable to live their lives in a normal and productive fashion.

Please watch Dr Nicoles informative video. She is a blessing:

The Damaging Physical Manifestations of Mercury Poisoning

Platysma-TMJ Dystonia  also took a great toll on the teeth. The bruxism caused  my upper and lower teeth to clench and at other times the jaws open and close very wide every second or so. That makes it hard for me to eat, (and I avoid eating in public, because the food falls out of my mouth). Almost the whole first year my teeth clattered so hard that one of my back molars got cracked and I had to spend money on a crown. My wonderful holistic dentist, Dr Piela, from Lake Como, NJ insisted I pull it, but I lost a molar 15 years ago and didn’t want two empty spaces, (making a huge gap). And the possibility of a cavitation. I have problems with the tooth and either have to stick a hot needle to release the pus, or go to Dr Piela for an Ozone shot in that area. The Bentonite clay has been a help in keeping the infection and inflammation down. This bizarre ailment has made me go through the more crazy things to deal with.

During the first several years of this Dystonia situation, two different neurologists ordered MRIs. One prescribed pain drugs and muscle relaxants, (which I told him would not give me relief). The other neurologist give a quick glance and suggested my problem could be related to my past Lyme Disease episode. No one even approached the idea that my jaw could be dislocated. My husband Mark was severely affected by my trauma and pursued every modality he thought could help, including acupuncture, magnets, special TMJ supplements and Rife machine. None helped at all. It was becoming a great crisis for both of us and affected our marriage in ways we never thought of.

About eight years into the TMJ Dystonia nightmare, I was feeling excruciating pain in the other jaw joint. (Around the end of my first year after being diagnosed with Dystonia), the right jaw also became extremely greatly affected and I had to put heat and ice several times a day to endure the pain. I could feel an abnormal bump when I felt that area. Many times, sobbing hysterically, I would beg Mark to find another doctor to help me.

We couldn’t even enjoy activities a normal couple enjoyed, a nice meal at a fine restaurant, bike-riding, socializing, movie theaters and even a car ride was unfeasible because of the pain and discomfort of sitting up for a long period.
http://amalgam.org/education/scientificevidenceresearch/mercuryamalgamfillingsmajorfactorperiodontaldiseaseoralhealthproblems/

I suffered other manifestations of mercury and metal poisoning, including mineral deficiencies and digestive/ malabsorption problems. The condition of my hair, skin and nails was terrible, dry and brittle and as of late, my hair has not grown and has even broken up to the extent that I have almost shoulder length hair instead of the very long, luxurious mane I used to sport. The mercury seems to have accumulated because of my love for tuna fish, which I ate several times for the protein content. Under my new detox regimen, (nutritional Balancing), no tuna or fish is allowed.

When Mark and I lived at our water front home, we did twice weekly FAR sauna sessions in our downstairs music room. He had also reminded me to stay on distilled water, (I’ve been faithfully drinking distilled water since I married him) and now I am certain that this was a mistake because it robbed my bones and joints of the necessary minerals and nutrients it needed. Today, I don’t advise anyone to drink distilled water without the guidance of skilled natural physician who has expert experience in detoxification. I’m paying a heavy price for following  wrong health advice.

The past year and a half, the TMJ-Dystonia issue was unmanageable and I begged Mark to take me to a Doctor Jeffrey Brown, who shares a Sleep-TMJ practice in Church Falls Virginia. I’d done much research about jaw joint damage and treatments and found amazing You Tube videos of the work Dr Brown and Dr Stack were doing with a Gelb mouth appliance for Tourette’s syndrome and TMJ sufferers. I was convinced that the Gelb appliance was the only thing I’d seen which had the effect of stabilizing a spastic and maladjusted jaw joint. The mouth piece itself was a staggering $4,000, (and out of our budget) but I was constantly in excruciating pain and the quality of my life was worsening. Something had to give or I’d be good as a vegetable. I was desperate for some relief, from the teeth grinding and the opening-closing movement of my mouth really hurt my jaw joints.

I was so sure that I had a jaw issue that I asked my primary care physician to refer me to a specialist who could order an MRI of my jaw joints. He agreed and I made my appointment with Dr Carlson, EMT specialists. I greatly anticipated the MRI results and as I had known, the MRI showed extensive damage and no more cartilage. I sobbed hysterically when I shared the details with Mark when he got home from work. At least my suspicions were confirmed so I could move forward with a treatment.

Mark and I finally drove to Church Falls, VA for my first appointment, X-rays and mouth appliance fitting with Dr Jeffrey Brown, TMJ-Sleep Center. I told Dr Jeffrey, I believed the integrity of my head, mouth and throat tissues were compromised because of the mercury spillage and here was the result. I also mentioned that being I was a professional vocalist for many years, the belting and long hours of performing made my jaw joint “pop” and that must have been the joint getting out of the socket. So much for a vigorous singing career and drinking distilled water.

What have I learned from this health crisis? I lost so much living my formerly creative and active life. My confidence has plummeted, because the facial and mouth spasms are so apparent, strangers stare at me in the grocery store, the library or even just walking down the street for a walk. Singing, which usually comes so easily and naturally is now a physical feat of exhaustion. My Platysma and SCM muscles are so tight, I can barely breathe or get air. I believe the mercury may have also made me extremely sensitive to EMF and WIFI, as well as bright lights.

Thankfully, my strong prayer life and a life of walking in thankfulness and praise to my Heavenly Father and Jesus has kept me sharp enough to continue my journal blogs- on WordPress and performing-recording my compositions. I keep encouraging myself, remembering my upscale Jazz gigs and teaching my classes. One day, soon, I will be doing what I love uplifting people! Though being housebound has been a bummer and the vicious spasms have prevented me from bringing joyful music to the elderly residents at Buttonwood Hospital. I often struggle with feeling ugly and freakish, but I refuse to allow this brutal beast to keep me down forever. There are too many people I need to teach, encourage and inform on health and wellness in Christ. That is my hope, Christ is my healer.

I hope my sharing all the details of my mercury amalgam filling disaster will make you nervous and concerned enough to carefully research a highly qualified Holistic dentist to remove you or your loved ones mercury filling. Please make sure to watch the informative videos. I want to thank Dr Nocole for her excellent video. She is the kind of dentist you can trust to protect your health and future. I also recommend my dentist Dr Elizabeth Piela, Lake Como, NJ for east coast people.

I’d like to mention that many Cancer survivors fare better than victims of mercury poisoning. Their neurological dysfunctions and TMJ issues may be misdiagnosed and many thousands of dollars can be wasted for treatments that don’t address the true issue. I hope this article helps you to make good decisions about your dental health and treatments. Please feel free to contact Dr Nicole, Dr Piela or me to answer any questions you may have. God bless you and stay healthy!

 

 

 

Dystonia, Tourette’s Syndrome & “Movement” Disorders and the TMJ Connection


DWNLOADED 9-24-2012 261

After  watching so many You  Tube videos of precious people suffering from  Tourette’s Syndrome, Dystonia and other movement disorders, I’ve decided to  include  “Movement” Disorders advocacy and information to my other health categories. Since suffering from TMJ-Dystonia for ten brutal years, I can no longer allow this  mysterious, vicious and often disabling neurological condition to disrupt and hinder my life. I vow to also  share valuable information, treatments and excellent doctors with everyone.

I cannot help but grieve for the enormity of  suffering and loss of quality of life, my movement disorder brethren suffer each day. Many of us  abide in prisons of extreme pain-discomfort,  embarrassment, isolation, depression and at time we grapple with losing  hope of ever  having a normal life. We avoid going out in public because people do not understand why our movements and loud voices have to be so disruptive.Some of our postures are downright bizarre and our movements erratic. Some of us spew profanities and we are often housebound

 Drugs often do little to give us relief or diminish the intensity of our uncontrollable movements, though most choose to use drugs in the hope that any day they will get better. My decision to discontinue prescribed pain-killers and pharmaceuticals ended a month after my first diagnosis. The muscle relaxers did nothing but make me spacey, apathetic and  drowsy. I finished my bottle and that was the end of it. Since then, my husband and i have chased many rabbit holes to find the root cause o my mouth-jaw spasms. Some of you may be asking. “Why not Botox or Deep Brain Stimulation surgery”? I am an ordained minister- prayer intercessor and Psalmist-Composer-Singer.  To create, produce music and  compose expositors, I must have a very lucid mind unhindered by any drugs.

 

It took almost nine years  researching the web, to find someone who could accurately address my  spasming mouth-jaws. I saw several You Tube videos from renowned  TMJ Specialist, Dr Jeffrey Brown, TMJ-Sleep Apnea center in Falls Church,  When I showed my husband, Mark, Dr. Browns and Dr Stacks, treatments he balked. It would be a burdensome expense. But the jaw misalignment had gotten to the point where it affected my sleep, my ability to even focus clearly on my creative productivity and even taking care of my house. I was in constant pain and the jerking, clenching-unclenching of my mouth was beyond anything I could endure..  Were it not for my strong relationship with Christ, I would have succumbed to  nervous breakdown!

 

Ir was getting harder and harder to endure the incredible pain in my now left jaw also  One day, my mouth was forcing itself to open so wide, the stress on my jaw joint was staggering to the point, I would pass out. I sobbed in and told Mark, I had to make an appointment with Dr brown. I was willing to travel any distance and though it would be a very costly investment, I was one I could not afford to invest in!

I watched more of Dr brown and Dr Stack’s You-Tube videos and was astounded at how successfully, the Tourette’s and TMJ Dystonia people responded. Indeed, their was something about that special mouth appliance that helped to re-align the jaw joints and helped to  decompress pressure on the facial and neck nerves.

So, Mark and i finally made the 3 hour drive to Falls Church. Dr Brown was kind enough to schedule my appointment,  the fitting of my mouth piece and its delivery all into one day, other wise we would have to go home to New Jersey and come back the very next day, which would have been too much for Mark since he was driving. I was so relieved that I could get relief from the bone on bone pain each day and the prevention of much bone spurs..

I continued my own  researching lower facial-jaw anatomy and how the jaw joint misalignment causes other issues, such as lose of cartilage. I found health websites that said that bone broth and gelatin helps. to rebuild cartilage. Dr Brown also told me to eliminate all dairy because it contributed to calcium loss! Now i understood how high calcium intakes caused by bones to lose calcium. I was very disappointed about my new diet wouldn’t include my former favorite cheeses and my twice weekly warm milk to get me to sleep before bed. My appetite was already poor because of being stressed and depressed about my jaw pain. It would be a new challenge to embrace a dairy-free diet and also get enough protein. Time for us also to not take serious our government guidelines lied to us and said dairy was bone-strengthening.’s nutritional guidelines.

It’s been around three months wearing this mouth appliance. I continue o declare my healing prayers each day and keep a positive outlook and attitude, knowing that nothing is impossible with God. He is more than able to completely  recreate new articular jaw joints,  cartilage and ligaments. I found several women on You Tube who received miraculous miracles of healing from God!  Without hearing these testimonies, I’m sure I would be in a deep depression.

Bridgette healed of TMJ!
https://www.youtube.com/watch?v=OJWnaPpzu7A

 

Minister Becky Dvorak also has an anointed healing ministry and she explains how a child of God can receive their healing.
https://www.youtube.com/watch?v=OJWnaPpzu7A

 

The next two videos show two y6oung men, patients of Dr Stack and TMJ Sleep Apnea Center, of which Dr Jeffrey Brown has now taken over. The TMJ-Dystonia symptoms I suffer from are very similar to  except I don’t have the vocal tics and grunting.  It’s hard to imagine these young guys dealing with these violent spasms all day.

The uncontrollable movements not only affect me socially but socially as well. I’ve denied many invitation from my husband to get out of the house and enjoy the beautiful, warm day at the flea market,  I just didn’t care to deal with the embarrassment of people staring at me while making ugly facial grimaces.

The two young men have had several successful adjustments with Dr Stack and have their lives back. There are many on the Facebook Dystonia groups who would greatly benefit from Dr Brown’s expertise in addressing jaw and facial misalignment.  This next link will take you inside the jaw misalignment connect as Dr Jeffrey gives us a lesson on  TMJ jaw joint anatomy.

http://sleepandtmjtherapy.com/2018/01/case-condylar-catastrophe/

https://www.youtube.com/watch?v=q0ixYKlwrNQ

 

As I continue aspiring to minister and serve victims of domestic violence, troubled youth and the elderly as well as successfully marketing  my color photo-journaling books, beaded jewelry, fashions  and  Christ-help books, I make every effort to share what I’ve learned and recommend the amazing services of Dr Jeffrey Brown.  This man has been compassionate and cares about his patients. Unlike other doctors and specialist who treat  all their patients alike and with little special  attention, Dr Brown, tailors His  treatments  for each unique patient. TMJ Dystonia sufferers from all over the United States and some even travel from out of the country for his treatment.

Dr Jeffrey Brown

Sleep & TMJ Therapy
2841 Hartland Road Suite 301
Falls Church, VA 22043   703-821-1103-

 

I hope after reading this blog and watchi8ng the videos, you will seriously consider your next step and journey into healing and getting your life back. I have the added blessing of calling out to my Heavenly Father, Jehovah, Rappha, my Healer and His precious son, Jesus Christ, Yahusha, who took our sicknesses and infirmities upon His own back, so that we can experience healing and restoration. I offer you the invitation today to accept Christ as your Savior and call upon Him to heal your disease-condition. Call upon His name and in the meantime, if you’re still suffering, God uses Dr Brown to help people today!

God Bless you and Shalom..on your healing journey.

THE FELLOWSHIP OF SUFFERING


DSCN3556 John 15:13 Greater love hath no man than this, that a man lay down his life for his friends.

Journal Entry, March3, 2017

My quest to find answers to the tormenting mystery of the JAW-mouth Dystonia continues. Each hour, I continue to rely heavily on Father giving me the strength to endure, uncomplainingly. My seasonal job, delivering telephone books door-to-door, started last week and my body is weary. from the windy-cold and the physical exertion.  Unlike  several years ago, when I bitterly complained to Father that I should be on tour with my incredible band. I told him, how hard it was to have do such humbling work when He had blessed me with such talent. And then the added grief of being misunderstood, alienated from wonderful fellowship and dealing with a tormentically distracting movement disorder was more than any human to bear. Even now, the pain in my (now also)  left jaw is painful and  I can barely stand to do anything. The past nine years of this  horrendous disorder (and the thought that there is no reversal for the damaged joints should cause me to sink into utter depression). Honestly, it has been lonely beyond belief and at times, I deem my small music-compassionate outreach, Brave Flame Productions-Outreach a thankless job, (at times). I am a very social person and  cherish the camaraderie of friends and loved ones being emotionally and spiritually connected with me.

Nevertheless, I realize that this ongoing suffering has brought about great change in my spiritual outlook and Father’s glorious workmanship in my life. This realization had brought me to create my 5 part-series journalism-color photographs and devotional series, ARISE FROM YOUR GRAVE. It has also compelled me to record and produce songs for two concurrent albums, a prophetic rock , Mod Prophet and a worship album, The Anointing, (His presence). One would expect that the result would be a publishing book deal and distribution or at least interest in the recorded works.  My book series still await  publication and my albums are still incomplete.

I wait upon the Lord, for He will renew my strength. What strength? For any passionately creative person in the midst of projects, there’s always the hope of success and renown. For the child of God, renown would be being sought after for the expertise of the skill. There is dealing with the disappointment of struggling financially and/or having few customers-patrons. So, I tell Father, more than anything… I wish to be in His perfect will.

This prayer brought me to place and realization of the precious treasure of His presence and company. In this quiet place of seeking Him above even success in my creative endeavors, He shows me what he truly values as spiritual wealth and abundance.

Each morning, as I arise to consciousness, I’ve disciplined my spirit to mediate on several verses. I have had to train myself because the left jaw is so violently  spastic that I awoke several times during the night in great pain. I didn’t want to succumb to anger or bitterness as I had with my past Lyme Disease battle in 1992.

Psalm 19:14

14 Let the words of my mouth, and the meditation of my heart, be acceptable in thy sight, O Lord, my strength, and my redeemer.

Once awake, I ask Holy Spirit to order my steps and  focus me on what scripture He wants me to meditate on.  During the next hour, He will show me someone who needs a prayerful phone call, a hand-made card or care package. Yesterday, a Christian sister’s name popped into my spirit. I said, “Okay Abba, I will call Jackie, (not her real name)”

sisters-comforting

When .I called Jackie, she replied, “That is amazing, Anita. I was thinking of you just yesterday and i was going to call you.” She asked me how I was doing with my jaw-mouth situation and I immediately gave her details of how I thought I was stopping my own healing. I slipped more often than I’d liked, saying  things like, day , “I can’t do that because of this disabling TMJ-Dystionia.” Lately, I was at least catching myself in mid sentence and repenting and saying, I am healed.” Jackie  admitted she was also speaking sickness over herself., her lungs and poor breathing. Jackie’s lungs had deteriorated so bad in the past year that she was on oxygen all day! I was thankful, that though my jaw-throat situation was very painful and distracting, at least I could drive and walk around freely. Jackie then confessed that during her seeking prayer to God about her suffering, she had deep, unresolved grief about her childhood and past.

I was astounded hen she mentioned her deep grief because i  was presently getting victory over my own many losses by reading a wonderful deliverance book, Pray Through It  by Rob Morrisette. The author was very detailed about the traumas and strongholds of his counselees and I was getting freer and freer reading about the victorious testimonies of the people.  Rob’s counseling manner was very detailed and he stressed bringing every painful incident to God in prayer and asking for healing. Jackie was very excited and wrote down the name of the book. I also shared with her about my joy of participating on the conference telephone line several hours each day with passionate prayer warriors across our nation. I told her how strengthened I was in their company and the powerful anointing of their prayers. She admitted to feeling judged around other brethren  and I felt she was constrained by a spirit of unworthiness. Jackie also took down the conference prayer call number and I prayed with her.

At the end of our discourse, Jackie was in tears and prayed for me. She thanked God for me being obedient God had put me on her heart the day before, but she didn’t call and was grateful that I was spiritually sensitive. I was deeply humbled and broken that Father was so gracious to even use me in such a way..to build up and strengthen my precious sister who  said she felt she was backslidden!

This call was a confirmation that I was  right where Father wanted me to be, sitting in his love and waiting for direction. My direction happens to be the gift of edifying, building up my brothers and sisters who feel broken  weak and unworthy.  Father is not so concerned about my creative endeavors, (however God-inspired they are) but about developing intuitiveness to the needs and brokenness of my brethren. In order to have sensitivity to ascertain that my brother and sister needs tenderness, encouragement or a tangible need, (such as rent money or groceries), I need to stay deeply connected and deeply compassionate, however rough or irresponsible they may seem. I’ve desperately longed for patience, long-suffering and understanding about my weird  movement (with loud voice) disorder and have often been judged harshly and misunderstood. But Father has used these painful times so I can learn long-suffering and kindness.  Separating myself unto Him and worshiping with a thankful heart has borough me to precious places of surrender, where I can give out of a pure heart. Though my physical reserves, (my energy) seem limited, my capacity to  love has so increased. Father is nurturing my capacity to love deeper than a surface level. If I encounter relationships were a brethren seems difficult, a nuisance or unpleasant to be around, I ask Father to remind me that there may be deeply-rooted generational issues or traumas from childhood and up.

The Pray It Through, book  has been eye-opening resource to delve deeply into the hearts of my brothers and sisters and where Father can groom me to love, not just in word and deed, but true empathy! I believe this is what causes strife and rejection in the body. We say we love  (and pray for) our brother or sister from afar, yet we will not come forth in honesty and reason at the table with them and our Heavenly Father.

I pray that my brothers and sisters take a deeper look at their season of suffering and submit it to our Abba. He will show us how he is breaking down ideologies of tradition, religion and even relationships, (as the secular arena perceives them). Our ways are not God’s ways and our thoughts are not His. He uses the weak, broken , ugly things, and even small, insignificant (according to the world’s standards) ministries.

He has made everything beautiful in His time. Ecc 3:11

When mega-churches and mega-ministries crumble at His glorious appearance because they did not minister to the orphans, widows and  foreigner, those ministries build on His compassion will thrive and be the lighthouse to the nations!

Let us remember that the temporary sufferings and lacks are not worthy to be compared with the glories which await us in heaven! be encouraged my brother and sister! God sees and he is pleased.

I WILL NOT LAY DOWN


DSCN2164

Ministering to elderly and sick nursing homes residents with Pee-Wee.

Note to Readers: My journaling of my battle with Dystonia-TMJ is to bring awareness to friends l loved ones in the hopes of giving more help, compassion and understanding to our deficiencies. I also hope doctors and medical personnel can understand the various areas of our lives that are restricted  and inhibit by inability to administer to our former duties, responsibilities and personal creative endeavors.  These journal entries and (medical personnel involved) . Our symptoms may even affect our judgement and/or mental-emotional prowess before we  had our condition. The utmost patience and compassion is needed for us to be contributors to our father’s kingdom. May our prayers, not just  for Dystonia, Alzheimer, Dementia ( or any other victim of a health disorder,)  not just be for our immediate healing, (so we don’t have to be inconvenienced) but to teach us patience and forbearance.

Journal Entry,  July 5, 2016

Just woke up to another overcast day, promising more rain. I don’t complain because many states are in a water crisis. My vegetable garden is flourishing, but the barometer and humidity has wrecked havoc with my jaw joints. When atmospheric pressure changes,  my neck muscles, nerves and jaws go berserk, making it almost impossible to accomplish any thing with merit. It’s going on two weeks trying to get together two of my best story to send to Guidepost inspirational magazine. I’m also waiting to get motivated to send m art package to a greeting card company here in Paterson, NJ.

Each day is different in this season of TMJ Dystonia in regards to what I’m able to accomplish, but it’s always the same regarding my determination to receive my miracle manifestation of healing. God has still not answered my question regarding what purpose this tormenting condition persists.  At times my flesh reminds me that it’s going on nine years and if God had a great plan for me, how could He be so cruel to allow it to linger and so curtail my vivaciousness and productivity. I remind myself that Abba is a good God and everything He gives is wonderful and needful to His children. One thing I know for sure ..that His ways are perfect and He does know how much I’m suffering. Satan’s plan is always to ambush our minds and barrage us with a continual spray of doubting questions, physical pain and our focus of it.

At times when I have a moment of peace, such as when I’m pulling acorn seedlings in my yard, I feel His gentle presence. Oddly, my muscles rest and my jaw is calm. My jaw and throat also seem to get calmer while I’m focusing on my fine bead work. But mostly, I’m groaning in agony as I press forward, (much like pushing through a tropical impenetrable forest),  through each hour to make it to bedtime. Here is where I rely on Father’s strength each day for sanity! When the neck spasms get so bad that I fall on the floor and writhe in pain, I can’t bare to be alive. Here is where I have to take captive that demonic spirit of suicide, death and insanity. I can’t explain to anyone except someone enduring daily pain on a scale of 8 or nine every waking moment of their lives.

After these many years, I deal with  the grief of losing a good chunk of my life. A dark season of nine years is a lot. I know brother Joseph, in the Bible, had to bear thirteen years of incarceration, but having a agonizing and distracting bodily condition is a whole new ball game. The most painful thing for me is deducing my relationship with Father, Jesus and Holy Spirit. I’ve always believed that valid and thriving  relationship with the Lord had to be true and breath-takingly reverent. My prayer times are anything but reverential  There’s a whole lot of shaking and  jerking going on, hardly my idea of anything pleasing to God!  My focused prayer and devotions to Him are at best , sporadic. (I’m just being transparent with you). I often go in to prayer expecting  the outcome to be detached and superficial because  mostly… I weep through the whole time! Whew. Imagine struggling through your talking to father God?

“Father forgive me for being this way.”

Maybe tomorrow, I will have no more spasms and I can joyfully never and praise him. This is the uncharted waters that the Bible doesn’t address, so I have to contend with disgust of my inability to give Father my best and to even give Him His proper due.

The other devastating thing i that doctors I’ve seen have no idea where to even start for a treatment program. They look at me in surprise and apologize that there is nothing they can do. I’ve been researching and GOOGLING for over six years and have  found only a few doctors who specifically treated Dystonia of the mouth and.or upper cervical area. A girl freind  messaged me a few weeks ago telling me she also was researching my condition and found a  Dr LEE, who has a private practice   in South Korea. Many of his  Dystonia and TMJ patients were getting successful results with his treatments!  I also found a doctor  in  DE who treated TMJ. Unfortunately, they are very few and far in between in NJ and to travel to other states like the doctor in Teaas would be very costly and inconvenient for my husband to take off work. I continue to ask and pray whether father wants me to wait for His divine supernatural creative miracle for my jaw or travel to a  TMJ physician. Father be merciful to us who are suffering.

Dr Lee’s practice and You-Tube link.

July 4th was spent praying for a breakthrough rest with my jaw and neck spasms. The day was already almost half over and I needed to express my love for my Heavenly Father. it was so frustrating, picking up my Taylor and just jerking so wildly, I had to lay down. Uselessness and despair threatened to ruin my day, but finally picked up my guitar anyway and started to sing my favorite energetic hymns, like Onward Christian Soldiers.  Anyway, I am more than a conqueror!

Fast forward today, brought my Bible, a Max Lucado devotional and Jewel’s book, Chasing The Dawn into the bedroom. I prayed that something would awaken my heart and I’d be able to move forward into my day. My eyes fell upon the subtitle of Jewel’s book, Melbourne, Australia. I’ve always dreamed of Australia even as a young girl. Down Under seemed a glorious utopia far away from the chaos and heartache of my present circumstance of my parents plan to divorce. I often dreamed in my bed at night that I would somehow end up there and live a peaceful and creative life!

So Jewel expressed the sensations of her entering the stage to perform her repertoire to her Australian fans. Her writing was so elegant and enticing, making me miss my own performing and composing tenure. I felt a profound sense of loss that I was so far and disconnected to that glorious season of my life. Words cannot describe a performance were the performer “feels” her audience and they feel her. It is an indescribable connection that infuses the artists expression of singing-performing (and doctors have no idea the profound effects that a neurological disorder as Dystonia-TMJ can have on the creativity of a talented singer-composer. This has been a major grief, few realize  the extent of loss when a performing artist is unable to perform (and compose)  at the high level she was used to. I feel less than human and disconnected that this condition has so disrupted the  beautiful overflow of expressing my music-soul.

When I perform before an audience, it’s like I gently fall off a trapeze like a leaf  I lose all sense of the present, of time and the faces that gaze at me.  Father placed me in a I  a divine bubble and I’m floating in His love. Everything around me fades into nothingness and all I’m aware of is the holiness  (and lightness0 of His presence. This has happened several times. Twice, when I sang at dying persons’ deathbed and at a funeral service, where a seer told my husband she saw cherubim dancing joyously around me as I sang my Psalm 91 original. Another recent time, was just last month while singing two of my favorite Hymns His Eye is on the Sparrow and It Is Well at a church concert. . Despite the fact I was miserable and my neck was inflamed with pain and my mouth was  moving violently, I grabbed Father’s hand and took His strength. No one could have been more surprised than me, when everyone stood up and joined me on the heart-rending chorus, It is Well With My Soul. I knew it was God and God alone who carried me through the song.

10-17-2012-205THE VOICE of an ANGEL

A girl, her voice and Guitar, Proclaiming the Love of Christ!

This dark season I’m immersed in is complicated, daunting and bizarre with its untold repercussions. I can’t bare to be seen in public because of the embarrassing facial grimaces and my arms and upper shoulder jerking. Even standing in line at the post office for fifteen minutes is main achievement. With these negative symptoms molding me into something no one would want to be, I’ve learned to make some adjustments. I’ve long discarded the activity of complaining and have made a lovely habit of making someone’s day a little better. If I’m at the grocery store I find something attractive about the person near me and compliment them. I so delights me to see them smile and to make their day by a compliment. The practice of being a blessing to someone is a high point of my day. I refuse to give the enemy any ground or make him think that his attacks on me will sully God’s wonderful destiny for me. I want to please my Father by serving and being a blessing no matter how hard it is! I feel sad for mean people because I know that they’ve not practiced and seen the results of kindness in spite of their physical misery, stressful relationship or mundane life. Persistent acts of kindness and serving cheerfully is evidence of a God-infused lifestyle.
All this being said, I’m reminded of President Abraham Lincoln, One of the greatest presidents who ever lived, who endured and succeeded despite countless failures and  disappointments, shut doors and heart-aches. Amazingly, he grabbed the bull by the horn  in all his tenacity and audacity…his faith in God almighty.  He prevailed, head held high even during one of America’s most horrific times, the Civil War. Though I’m not faced with anarchy, riots and the threat of assassination, I still am facing a mountain which shall be moved by my obstinate faith in the God who restores and rewards all things.

http://www.school-for-champions.com/history/lincoln_failures.htm#.V3v21hJ4K1s

Weathering Dystonia,  (as president Lincoln faced his own giants) I know that God must have a very important job for me to do in the future and He is preparing and training me for such a time as this. Thankfully, July 5, 20016, we are still in peace here in America and life is somewhat normal. I recently watched a Christian outreach organization,  Ezra International outreach who focused their relief efforts on the refugees from cities near Ukraine. Soldiers had all but demolishes the businesses, neighborhoods and banks by bombs and machine gun fire. I couldn’t believe my eyes as I gazed at the footage of such devastation. Thousands were killed, there were bodies in the streets and many holocaust survivors were starving and left on their own. America could soon be enduring the same fate and I prayed that God would be merciful to the sick, elderly and young ones. Any of us American citizens could suddenly face the terrible war atrocities as our brethren in war-torn Ukraine and any other middle eastern city!

So… it would behoove me…and everyone to thank God that our country is still somewhat intact and not facing the atrocities and hardships of war and judgment.  Maybe for a short time, we are still the land of the free and though my own personal suffering is challenging, t’s nowhere near the suffering of people who’ve had their homes destroyed by bombs and have no where to go to get their next meal.

Dystonia reminds me of the need to be more compassionate, empathetic and giving of my resources to those who have less. Though I’d never wish anyone to endure a condition that robs and diminishes so much of our lives, the blessing in disguise is the  awareness and empathy of others sufferings and the motivation to do something about it!

Perhaps that is the gift Father looks to glean when we face a loss or bodily suffering. May father use you and I greatly to strengthen someone who has a deformity, impediment of disability

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