A DAY in the LIFE of DYSTONIA, (Eight Years)


Eight years and counting…but trusting and believing that I am HEALED by Jesus stripes. I refuse to disbelieve that Christ also endured  the beating for Dystonia, Lupus, ALS  and PSP. These are all satanic attacks and I continue to declare my healing.

https://www.youtube.com/watch?v=sCo82bv5lRM

Dear Jim, my dear precious man, My heart goes OUT to you also. I’m a lovely gal whose life has been severely humbled and humiliated also. My struggle with mouth, tongue and throat Dystonia has been a living hell every waking moment. Others couldn’t imagine the heartbreak and anguish having to deal with CERVICAL issues which affect almost every area of our body’s and even the organs and brain neurotransmitter activity. Doctors DO NOT care about doing deeper studies on Dystonia because thy get their kickbacks from the DRUG companies. I for one CANNOT take drugs because my calling as an artist, worship leader, composer and journalist depends on my mind being high mental acuity. So my choice is suffering from great pain from a misaligned JAW joint (TMJ) to bitten my tongue til it bleeds and my lower face and mouth making the ugliest grimaces. For a woman, this is demeaning…so I’m housebound almost all of the week. the only time I get out is when I drive myself to my Chriro for my adjustment which does nothing to stop the facial movements. Driving is grueling because my nervous system reacts violently to the engine power, so my mouth goes Berserk!

This next video is about Sara’s battle with Dystonia (TMJ disorder) She’s another hero of mine and her symptoms are very similiar of what my body has suffered. Following is a list of her symptoms.  I highly recommend anyone enduring Dystonia to get a good MRI of your jaw area to see if your misaligned tooth bite is the problem. I tore my jaw ligament while singing a high E note while singing. I heard  something that sounded like a crack or tear and a week later, my problem started. Unfortunately, doctors and neurologists focused on the brain area and spine, but did NOT focus on the  jaw area:) Also consider any head trauma or car accidents . I pray my blog will open up some more areas for you to find relief for your Dystonia.

The following are Sara’s symptom

Secondary/Acquired Paroxysmal Dystonia moving to Generalised Dystonia, Dystonic Storms, Tremor, Teeth clenching, Migraines
Jaw pain, Temple pain left side, Neck Pain, Back Pain, Shoulder Pain, Low back pain, Headaches, Faint/Lightheaded, Concentration issues, Occasional stutter/slurring, Vertigo, Memory impairment, Hearing impairment right side, Balance problems, Chronic Fatigue
Visual disturbances, Light sensitivity, Sound sensitivity, Smell sensitivity and lack of smell, Ear ache intermittent, Dulling of hearing, Tinnitus (occasionally), Loss of taste (I was just adding lots of salt and didn’t realise!), Toothache, Breathing difficulties, Sinus issues, Snoring
Difficult to wake up/drowsiness, Weak muscles – especially arms/legs/ unable to easily hold phone or brush hair, Sharp and Chronic hand/finger pain, Fine motor control issues -writing/eating/DIY, Slowed movement/ability to move, Biting back/sides of tongue all the time, Sensitive teeth (sometimes), Raynaud’s Syndrome (cold feet and hands), Knee pain, Hip pain, Upper arm and upper thigh (lymph) pain

 

I give all glory and thanks to the Lord for ANY creative endeavor I attempt to finish, (my recording of my albums and my 5-part series book! the incessant & violent pulling on my neck and thraot muscles DRAINS any motivation out of me, so I’m constantly crying out to Father for strength. I pray that all my beloved ones, thank God everyday for being able to enjoy your relationship with your precious heavenly Father, Jesus & Holy Spirit. You have NO idea how much easier it is to life life hen you’re not in agony every waking moment. Thank Him everyday for your health and mobility. Many are disabled by DYSTONIA or suicidal. I give ALL thanks to my wonderful Father for helping me endure this daily cross.  all and Please be patient and compassionate to those who have disability. It’s twice as hard to KEEP your marbles together! blessings to you all!

 

Here is another young lady suffering from a TMJ disorder.

BEAUTIFUL hand-beaded, one-of-a-kind Chokers


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About Artist,Anita Ivette Ferrer

Anita Ivette Ferrer thought her unexpected health affliction would be short-lived. She didn’t expect to be still struggling over seven years later from Dystonia, a mysterious movement disorder which doctors say has no known cause nor cure. Anita is used to engaging challenging circumstances, but her latest has brought her to the forefront of uncharted territory Faith in Jesus Christ in hand coupled with an iron will propels her to new heights of spiritual self-discovery, supernatural trust in God and ultra creativity.

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When she wakes up each morning, she inwardly dreads another day coping with the pain and fatigue which could restrict her ability to live a normal life. But as she gets up from her bed, she relies upon Christ to empower her with strength and hope for the day! Her prayers are always answered as she tackles her house chores, outreach to the bedridden, elderly and dying and her creative endeavors.

fall,2014 128 my collection of Beautiful chokers
Quite by accident, Anita found a temporary respite from her violent facial twitching while repairing some old broken beaded chokers. She found that focusing upon the fine beadwork caused the muscles to cease pulling! The next thing she knew, she was spending more and more time at the craft stores purchasing unique, beautiful beads for her new passion!

Anita, 1989 Magna Cum Laude Brookdale Community College graduate whose major studies were in the humanities and social services, never imagined that a condition like Dystonia would lead her back to her childhood talent, designing!

fall,2014 139Anita believes with all her heart that her healing could be just a heart beat away. Though each day continues to be a struggle, God inspires her to keep the momentum going! She has learned through overcoming battle with chronic Lyme Disease, poverty, child abuse and domestic violence that in order to grow, one must re-invent themselves! Though she’s had to greatly curtail her performing and song-writing due to the spasms, her beaded jewelry design has taken her to new levels of exciting creativity and an opportunity to share her craft with the world. She also hopes to educate the public about Dystonia and movement disorders which are increasing. As yet the only treatments for Dystonia are Botox injections and DPS Deep Brain stimulation which Anita feels would not help her symptoms.

Anita resides with her husband and their cats in Browns Mills, NJ. She is also available to minister in music at your church or special event.

close up anita OG

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Purchase of Anita’s creations helps her to continue ministering to the elderly, disable and hospice patient. You can find out more about Anita via her http://www.anitaivetteferrer.wordpress.com blogsite

Anita Ivette Ferrer
Anita Ivette Ferrer One of a Kind Designs
Brave Flame Productions & Outreach
Po Box 102, Bradley Beach, NJ 07720
609-893-2397

Prices range from $25 to $70

Christmas special two for one price `

Proceeds to Dystonia research and Brave Flame Productions & Outreach

CHRISTIAN MUSIC, A Part of my Story


DSCN2555As an aspiring, physically-challenged and independent song-writer-worship leader for 28 years, I’ve seen the best and worse from the Christian music industry. When Margaret Becker debuted with her “Never for Nothing” (Heart-tinged spiritual power rock and ballads), I fell in love.
Her heart-felt passion and yearning for her Heavenly Father and “higher things” captured my attention. I wanted to be just like Margaret, fronting a tight band with her electric guitar and sharing the transforming love of Christ with the world

Things did not go as I’d planned, quite the opposite, I was diagnosed with Lyme, Disease, a destructive killer that often maimed and killed its victims. But God had plans for me and despite many years of postponing my recording and not finding the right production for my material, I stayed true to His call.

My years battling immune disorders took me to great depths of despair, but God continually inspired me with poetry and melodies which I kept in my heart for the right time. It was a lonely journey.  Coincidentally, God also put people in my path many who also struggled with life-threatening illnesses and I found I had a heart eager to mentor them through their medical-health crisis with the wisdom God was grooming in me! My battles and trials were amounting to great spiritual successes.

I continued to receive great inspiration to write songs. I continued to record the new material, but it just didn’t portray me or catch the attention of  major label A&R people. I  invited a rapper-preacher to showcase with me at a Bradley beach, NJ outdoor summer concert in 1992.. Reverend Kevin Nunn was amazed watching me lug and set up my heavy PA equipment before the show. He saw my passion and devotion to the Lord and remarked that my voice was lovely and my messages so powerful.

“Girl…with that voice and range, you need better production to hook the listener in!”
Kevin dragged me into his studio to re-mix “Til It Happens To You” and other folk-style recordings. Even though I balked at remixing my white-bread songs to a Christian urban Black audience , (because I felt I was corny)  Kevin said, Brother  Paul reiterated “I am ALL things to all people.”

Since that concert, fast  forward, fifteen years have passed , (and  almost five original and two cover albums later), still disappointed that my audience and fan base hasn’t exploded,  but knowing that God would one day bring much fruit from my  infrequent live performances. Though my present TMJ-Dystonia challenge has halted much of what I’d love to do with my live performing,  I stay focused and disciplined with my voice scales and composing everyday.

I am forever grateful for my song-writer friend who encouraged me to join Indie  Heaven,  online  Christian musician network. There on the forum, I got to network with the finest and aspiring amateurs who sought a platform for their gifts. CEO, Keith Mohr, our seasoned veteran founder had so much to teach us. Every one of us listened and learned all we could from Keith’s wisdom and expertise from the Christian music industry. Though I was often frustrated with my slow  progress, (of pinpointing the niche my eclectic-vintage style fit into) I stood my ground. I was here to stay!

One thing we artist had to learn was to be flexible, (about changing our baby, our songs)  but focused on our artistic growth. Many locked horns with Keith, but he stood his ground. He would say, “Take it or leave it” regarding his counsel. And many disgruntled members did leave with unkind words.  God used Keith to ruffle or feathers and smoothing our rough edges. I’ve seen tough spirits soften and Keith stretching out his neck to fill music and ministry needs. I’m happy to say that I’m staying here because Keith’s wisdom is logical and sound. And he really is a great guy!

http://www.indieheaven.com/artist_main.php?id=6487

The music industry (especially) the Christian music industry must be navigated with excellence and caution. Indie heaven is the place where you learn about great producing, recording technique, song-writing artistry, common-sense wisdom about networking and  self-confidence. Here is where you come as you are and get groomed and  polished for the industry. It’s also the place to learn about and understand the industry and most importantly, learn and become true ministry.

An added blessing is Sue Ross-Mohr,  music consultant and Keith’s amazing wife , who brings  to Indie Heaven her intuition about people’s hidden and unique gifts. Sue has spotted my artistry in writing, saying that I need to write a 5-book series because I have so much to say.. Her insight and expertise has been invaluable and I’m deeply grateful and humbled that she has given of herself to assist me in my difficult journey.

Keith often reminds us that there is no higher calling than serving. Serving in the spirit of deep Christ-like sacrificial love brings true joy and fulfillment. Indie heaven is a good place to sharpen your people skills and fine-tune your artistry. Margaret Becker and Keith Mohr have been my greatest music influences. May my Heavenly Father  continue to bless their  callings.

RECEIVE


Audio Maxx Studios

I just completed- my latest song, RECEIVE with the awesome and talented, Steve Migliore, (Mr Mig) Audio Maxx Studios, Cherry Hill NJ. What an experience to stretch my musical boundaries and learn! I’m never one to settle for or accept the normal or the mainstream, so when I had to opportunity to have a song produced with Steve, I said I would take a dive into the unknown!

It was tricky finding a song that would lend to the dance beat, but we settled on my haunting, melancholy acoustic folk ballad from “Asbury Park Angel”, my 2nd CD).  Boy, did Steve work it! The message of forgiveness and letting go of bitterness is still there, but the arrangement really grabs your ears and commands you to to receive love.

 

This is a message that many women (and men) need to apply to their lives. When you are betrayed by a lover or best friend, you don’t want any part of them. The command is even more relevant to God’s elect, the bride. We must be meticulous in loving, forgiving and knowing that we are the ones the world will look to for direction and guidance.

I recommend Steve, to  all   serious artists who want to present themselves to the music world in the most polished, professional way. Steve, is not only at the top of his field, but a wonderful human being as well.  I look forward to working on many more project in the Dance/pop genre. God bless Steve Migliore and his wonderfully talented protege, Andrew Wysong!