Dystonia, Tourette’s Syndrome & “Movement” Disorders and the TMJ Connection


DWNLOADED 9-24-2012 261

After  watching so many You  Tube videos of precious people suffering from  Tourette’s Syndrome, Dystonia and other movement disorders, I’ve decided to  include  “Movement” Disorders advocacy and information to my other health categories. Since suffering from TMJ-Dystonia for ten brutal years, I can no longer allow this  mysterious, vicious and often disabling neurological condition to disrupt and hinder my life. I vow to also  share valuable information, treatments and excellent doctors with everyone.

I cannot help but grieve for the enormity of  suffering and loss of quality of life, my movement disorder brethren suffer each day. Many of us  abide in prisons of extreme pain-discomfort,  embarrassment, isolation, depression and at time we grapple with losing  hope of ever  having a normal life. We avoid going out in public because people do not understand why our movements and loud voices have to be so disruptive.Some of our postures are downright bizarre and our movements erratic. Some of us spew profanities and we are often housebound

 Drugs often do little to give us relief or diminish the intensity of our uncontrollable movements, though most choose to use drugs in the hope that any day they will get better. My decision to discontinue prescribed pain-killers and pharmaceuticals ended a month after my first diagnosis. The muscle relaxers did nothing but make me spacey, apathetic and  drowsy. I finished my bottle and that was the end of it. Since then, my husband and i have chased many rabbit holes to find the root cause o my mouth-jaw spasms. Some of you may be asking. “Why not Botox or Deep Brain Stimulation surgery”? I am an ordained minister- prayer intercessor and Psalmist-Composer-Singer.  To create, produce music and  compose expositors, I must have a very lucid mind unhindered by any drugs.

 

It took almost nine years  researching the web, to find someone who could accurately address my  spasming mouth-jaws. I saw several You Tube videos from renowned  TMJ Specialist, Dr Jeffrey Brown, TMJ-Sleep Apnea center in Falls Church,  When I showed my husband, Mark, Dr. Browns and Dr Stacks, treatments he balked. It would be a burdensome expense. But the jaw misalignment had gotten to the point where it affected my sleep, my ability to even focus clearly on my creative productivity and even taking care of my house. I was in constant pain and the jerking, clenching-unclenching of my mouth was beyond anything I could endure..  Were it not for my strong relationship with Christ, I would have succumbed to  nervous breakdown!

 

Ir was getting harder and harder to endure the incredible pain in my now left jaw also  One day, my mouth was forcing itself to open so wide, the stress on my jaw joint was staggering to the point, I would pass out. I sobbed in and told Mark, I had to make an appointment with Dr brown. I was willing to travel any distance and though it would be a very costly investment, I was one I could not afford to invest in!

I watched more of Dr brown and Dr Stack’s You-Tube videos and was astounded at how successfully, the Tourette’s and TMJ Dystonia people responded. Indeed, their was something about that special mouth appliance that helped to re-align the jaw joints and helped to  decompress pressure on the facial and neck nerves.

So, Mark and i finally made the 3 hour drive to Falls Church. Dr Brown was kind enough to schedule my appointment,  the fitting of my mouth piece and its delivery all into one day, other wise we would have to go home to New Jersey and come back the very next day, which would have been too much for Mark since he was driving. I was so relieved that I could get relief from the bone on bone pain each day and the prevention of much bone spurs..

I continued my own  researching lower facial-jaw anatomy and how the jaw joint misalignment causes other issues, such as lose of cartilage. I found health websites that said that bone broth and gelatin helps. to rebuild cartilage. Dr Brown also told me to eliminate all dairy because it contributed to calcium loss! Now i understood how high calcium intakes caused by bones to lose calcium. I was very disappointed about my new diet wouldn’t include my former favorite cheeses and my twice weekly warm milk to get me to sleep before bed. My appetite was already poor because of being stressed and depressed about my jaw pain. It would be a new challenge to embrace a dairy-free diet and also get enough protein. Time for us also to not take serious our government guidelines lied to us and said dairy was bone-strengthening.’s nutritional guidelines.

It’s been around three months wearing this mouth appliance. I continue o declare my healing prayers each day and keep a positive outlook and attitude, knowing that nothing is impossible with God. He is more than able to completely  recreate new articular jaw joints,  cartilage and ligaments. I found several women on You Tube who received miraculous miracles of healing from God!  Without hearing these testimonies, I’m sure I would be in a deep depression.

Bridgette healed of TMJ!
https://www.youtube.com/watch?v=OJWnaPpzu7A

 

Minister Becky Dvorak also has an anointed healing ministry and she explains how a child of God can receive their healing.
https://www.youtube.com/watch?v=OJWnaPpzu7A

 

The next two videos show two y6oung men, patients of Dr Stack and TMJ Sleep Apnea Center, of which Dr Jeffrey Brown has now taken over. The TMJ-Dystonia symptoms I suffer from are very similar to  except I don’t have the vocal tics and grunting.  It’s hard to imagine these young guys dealing with these violent spasms all day.

The uncontrollable movements not only affect me socially but socially as well. I’ve denied many invitation from my husband to get out of the house and enjoy the beautiful, warm day at the flea market,  I just didn’t care to deal with the embarrassment of people staring at me while making ugly facial grimaces.

The two young men have had several successful adjustments with Dr Stack and have their lives back. There are many on the Facebook Dystonia groups who would greatly benefit from Dr Brown’s expertise in addressing jaw and facial misalignment.  This next link will take you inside the jaw misalignment connect as Dr Jeffrey gives us a lesson on  TMJ jaw joint anatomy.

http://sleepandtmjtherapy.com/2018/01/case-condylar-catastrophe/

https://www.youtube.com/watch?v=q0ixYKlwrNQ

 

As I continue aspiring to minister and serve victims of domestic violence, troubled youth and the elderly as well as successfully marketing  my color photo-journaling books, beaded jewelry, fashions  and  Christ-help books, I make every effort to share what I’ve learned and recommend the amazing services of Dr Jeffrey Brown.  This man has been compassionate and cares about his patients. Unlike other doctors and specialist who treat  all their patients alike and with little special  attention, Dr Brown, tailors His  treatments  for each unique patient. TMJ Dystonia sufferers from all over the United States and some even travel from out of the country for his treatment.

Dr Jeffrey Brown

Sleep & TMJ Therapy
2841 Hartland Road Suite 301
Falls Church, VA 22043   703-821-1103-

 

I hope after reading this blog and watchi8ng the videos, you will seriously consider your next step and journey into healing and getting your life back. I have the added blessing of calling out to my Heavenly Father, Jehovah, Rappha, my Healer and His precious son, Jesus Christ, Yahusha, who took our sicknesses and infirmities upon His own back, so that we can experience healing and restoration. I offer you the invitation today to accept Christ as your Savior and call upon Him to heal your disease-condition. Call upon His name and in the meantime, if you’re still suffering, God uses Dr Brown to help people today!

God Bless you and Shalom..on your healing journey.

I WILL NOT LAY DOWN


DSCN2164

Ministering to elderly and sick nursing homes residents with Pee-Wee.

Note to Readers: My journaling of my battle with Dystonia-TMJ is to bring awareness to friends l loved ones in the hopes of giving more help, compassion and understanding to our deficiencies. I also hope doctors and medical personnel can understand the various areas of our lives that are restricted  and inhibit by inability to administer to our former duties, responsibilities and personal creative endeavors.  These journal entries and (medical personnel involved) . Our symptoms may even affect our judgement and/or mental-emotional prowess before we  had our condition. The utmost patience and compassion is needed for us to be contributors to our father’s kingdom. May our prayers, not just  for Dystonia, Alzheimer, Dementia ( or any other victim of a health disorder,)  not just be for our immediate healing, (so we don’t have to be inconvenienced) but to teach us patience and forbearance.

Journal Entry,  July 5, 2016

Just woke up to another overcast day, promising more rain. I don’t complain because many states are in a water crisis. My vegetable garden is flourishing, but the barometer and humidity has wrecked havoc with my jaw joints. When atmospheric pressure changes,  my neck muscles, nerves and jaws go berserk, making it almost impossible to accomplish any thing with merit. It’s going on two weeks trying to get together two of my best story to send to Guidepost inspirational magazine. I’m also waiting to get motivated to send m art package to a greeting card company here in Paterson, NJ.

Each day is different in this season of TMJ Dystonia in regards to what I’m able to accomplish, but it’s always the same regarding my determination to receive my miracle manifestation of healing. God has still not answered my question regarding what purpose this tormenting condition persists.  At times my flesh reminds me that it’s going on nine years and if God had a great plan for me, how could He be so cruel to allow it to linger and so curtail my vivaciousness and productivity. I remind myself that Abba is a good God and everything He gives is wonderful and needful to His children. One thing I know for sure ..that His ways are perfect and He does know how much I’m suffering. Satan’s plan is always to ambush our minds and barrage us with a continual spray of doubting questions, physical pain and our focus of it.

At times when I have a moment of peace, such as when I’m pulling acorn seedlings in my yard, I feel His gentle presence. Oddly, my muscles rest and my jaw is calm. My jaw and throat also seem to get calmer while I’m focusing on my fine bead work. But mostly, I’m groaning in agony as I press forward, (much like pushing through a tropical impenetrable forest),  through each hour to make it to bedtime. Here is where I rely on Father’s strength each day for sanity! When the neck spasms get so bad that I fall on the floor and writhe in pain, I can’t bare to be alive. Here is where I have to take captive that demonic spirit of suicide, death and insanity. I can’t explain to anyone except someone enduring daily pain on a scale of 8 or nine every waking moment of their lives.

After these many years, I deal with  the grief of losing a good chunk of my life. A dark season of nine years is a lot. I know brother Joseph, in the Bible, had to bear thirteen years of incarceration, but having a agonizing and distracting bodily condition is a whole new ball game. The most painful thing for me is deducing my relationship with Father, Jesus and Holy Spirit. I’ve always believed that valid and thriving  relationship with the Lord had to be true and breath-takingly reverent. My prayer times are anything but reverential  There’s a whole lot of shaking and  jerking going on, hardly my idea of anything pleasing to God!  My focused prayer and devotions to Him are at best , sporadic. (I’m just being transparent with you). I often go in to prayer expecting  the outcome to be detached and superficial because  mostly… I weep through the whole time! Whew. Imagine struggling through your talking to father God?

“Father forgive me for being this way.”

Maybe tomorrow, I will have no more spasms and I can joyfully never and praise him. This is the uncharted waters that the Bible doesn’t address, so I have to contend with disgust of my inability to give Father my best and to even give Him His proper due.

The other devastating thing i that doctors I’ve seen have no idea where to even start for a treatment program. They look at me in surprise and apologize that there is nothing they can do. I’ve been researching and GOOGLING for over six years and have  found only a few doctors who specifically treated Dystonia of the mouth and.or upper cervical area. A girl freind  messaged me a few weeks ago telling me she also was researching my condition and found a  Dr LEE, who has a private practice   in South Korea. Many of his  Dystonia and TMJ patients were getting successful results with his treatments!  I also found a doctor  in  DE who treated TMJ. Unfortunately, they are very few and far in between in NJ and to travel to other states like the doctor in Teaas would be very costly and inconvenient for my husband to take off work. I continue to ask and pray whether father wants me to wait for His divine supernatural creative miracle for my jaw or travel to a  TMJ physician. Father be merciful to us who are suffering.

Dr Lee’s practice and You-Tube link.

July 4th was spent praying for a breakthrough rest with my jaw and neck spasms. The day was already almost half over and I needed to express my love for my Heavenly Father. it was so frustrating, picking up my Taylor and just jerking so wildly, I had to lay down. Uselessness and despair threatened to ruin my day, but finally picked up my guitar anyway and started to sing my favorite energetic hymns, like Onward Christian Soldiers.  Anyway, I am more than a conqueror!

Fast forward today, brought my Bible, a Max Lucado devotional and Jewel’s book, Chasing The Dawn into the bedroom. I prayed that something would awaken my heart and I’d be able to move forward into my day. My eyes fell upon the subtitle of Jewel’s book, Melbourne, Australia. I’ve always dreamed of Australia even as a young girl. Down Under seemed a glorious utopia far away from the chaos and heartache of my present circumstance of my parents plan to divorce. I often dreamed in my bed at night that I would somehow end up there and live a peaceful and creative life!

So Jewel expressed the sensations of her entering the stage to perform her repertoire to her Australian fans. Her writing was so elegant and enticing, making me miss my own performing and composing tenure. I felt a profound sense of loss that I was so far and disconnected to that glorious season of my life. Words cannot describe a performance were the performer “feels” her audience and they feel her. It is an indescribable connection that infuses the artists expression of singing-performing (and doctors have no idea the profound effects that a neurological disorder as Dystonia-TMJ can have on the creativity of a talented singer-composer. This has been a major grief, few realize  the extent of loss when a performing artist is unable to perform (and compose)  at the high level she was used to. I feel less than human and disconnected that this condition has so disrupted the  beautiful overflow of expressing my music-soul.

When I perform before an audience, it’s like I gently fall off a trapeze like a leaf  I lose all sense of the present, of time and the faces that gaze at me.  Father placed me in a I  a divine bubble and I’m floating in His love. Everything around me fades into nothingness and all I’m aware of is the holiness  (and lightness0 of His presence. This has happened several times. Twice, when I sang at dying persons’ deathbed and at a funeral service, where a seer told my husband she saw cherubim dancing joyously around me as I sang my Psalm 91 original. Another recent time, was just last month while singing two of my favorite Hymns His Eye is on the Sparrow and It Is Well at a church concert. . Despite the fact I was miserable and my neck was inflamed with pain and my mouth was  moving violently, I grabbed Father’s hand and took His strength. No one could have been more surprised than me, when everyone stood up and joined me on the heart-rending chorus, It is Well With My Soul. I knew it was God and God alone who carried me through the song.

10-17-2012-205THE VOICE of an ANGEL

A girl, her voice and Guitar, Proclaiming the Love of Christ!

This dark season I’m immersed in is complicated, daunting and bizarre with its untold repercussions. I can’t bare to be seen in public because of the embarrassing facial grimaces and my arms and upper shoulder jerking. Even standing in line at the post office for fifteen minutes is main achievement. With these negative symptoms molding me into something no one would want to be, I’ve learned to make some adjustments. I’ve long discarded the activity of complaining and have made a lovely habit of making someone’s day a little better. If I’m at the grocery store I find something attractive about the person near me and compliment them. I so delights me to see them smile and to make their day by a compliment. The practice of being a blessing to someone is a high point of my day. I refuse to give the enemy any ground or make him think that his attacks on me will sully God’s wonderful destiny for me. I want to please my Father by serving and being a blessing no matter how hard it is! I feel sad for mean people because I know that they’ve not practiced and seen the results of kindness in spite of their physical misery, stressful relationship or mundane life. Persistent acts of kindness and serving cheerfully is evidence of a God-infused lifestyle.
All this being said, I’m reminded of President Abraham Lincoln, One of the greatest presidents who ever lived, who endured and succeeded despite countless failures and  disappointments, shut doors and heart-aches. Amazingly, he grabbed the bull by the horn  in all his tenacity and audacity…his faith in God almighty.  He prevailed, head held high even during one of America’s most horrific times, the Civil War. Though I’m not faced with anarchy, riots and the threat of assassination, I still am facing a mountain which shall be moved by my obstinate faith in the God who restores and rewards all things.

http://www.school-for-champions.com/history/lincoln_failures.htm#.V3v21hJ4K1s

Weathering Dystonia,  (as president Lincoln faced his own giants) I know that God must have a very important job for me to do in the future and He is preparing and training me for such a time as this. Thankfully, July 5, 20016, we are still in peace here in America and life is somewhat normal. I recently watched a Christian outreach organization,  Ezra International outreach who focused their relief efforts on the refugees from cities near Ukraine. Soldiers had all but demolishes the businesses, neighborhoods and banks by bombs and machine gun fire. I couldn’t believe my eyes as I gazed at the footage of such devastation. Thousands were killed, there were bodies in the streets and many holocaust survivors were starving and left on their own. America could soon be enduring the same fate and I prayed that God would be merciful to the sick, elderly and young ones. Any of us American citizens could suddenly face the terrible war atrocities as our brethren in war-torn Ukraine and any other middle eastern city!

So… it would behoove me…and everyone to thank God that our country is still somewhat intact and not facing the atrocities and hardships of war and judgment.  Maybe for a short time, we are still the land of the free and though my own personal suffering is challenging, t’s nowhere near the suffering of people who’ve had their homes destroyed by bombs and have no where to go to get their next meal.

Dystonia reminds me of the need to be more compassionate, empathetic and giving of my resources to those who have less. Though I’d never wish anyone to endure a condition that robs and diminishes so much of our lives, the blessing in disguise is the  awareness and empathy of others sufferings and the motivation to do something about it!

Perhaps that is the gift Father looks to glean when we face a loss or bodily suffering. May father use you and I greatly to strengthen someone who has a deformity, impediment of disability

SILENCING the SONGBIRD


angel in  copper silk gown1“Lord, help me get through this. Help me, please” I kept saying as my jaw and mouth started to throb and convulse. I boldly accepted my pastor’s invitation to perform at the Jackson Baptist glory Celebration, a musical worship concert of local worship leaders and teams. A week ago, I emailed Pastor Sandra that I’d be performing His Eye is on the Sparrow and It is Well, two of my favorites that I sang to the residents of my area nursing home and the local physical rehabilitation centers. Those two songs were staples because they were a reminder of God’s promise to me that He was with me even in the valley. I had to play these two songs on my guitar almost everyday, just to remind myself that indeed, despite the incessant, tormenting pulling in my neck, the jerking of my arms and the rapid opening and closing of my mouth, one day, I would be released. It took every ounce of focus to do anything of substance. During this TMJ-Dystonia tenure, I’d programmed myself to call upon the Lord to strengthen me.. Steadfast confidence and reliance on Him was always the reward. That was who Father was,…always gracious in answering my prayer to give my best to my performances.

As more people entered the church, I could feel the excitement, which propelled me even more to be in close communion with Father. My husband Mark, saw I was in distress and massaged my neck. A girlfriend showed up, excited and encouraging and also gave me a neck massage.
People were filling into the well-lit church while the musicians and singers waited on the platform for the sound engineer to tweak their sound. My turn came and I adjusted the microphone. An older guitarist gentleman told me I could plug my guitar to his box which was a blessing so I didn’t have to set up all my effects pedals. Then I took a back seat near the edge of the church so people wouldn’t see my mouth contort. I hunched over in my seat, trying to take deep breaths to control the violent pulling and spasming in my neck. I felt an anxiety rise up, which always happened when the muscles got inflamed from the continua movement of my jaw. I continued to pray and stay alert .It was getting harder and harder to stay comfortable and I had to fight the impulse to run to the car and lay on my back for relief.

Finally, the concert started with a vivacious acapella trio. I was third in line. Then my Pastor approached the stage and introduced herself and me. I scurried up to the platform, nonchalant about my nondescript and unglamourous appearance. I’d long ago discarded my adherence to looking beautiful and well-coifed because it took so much energy to get through each hour. It had come to the point where it took an enormous amount of focus to do basic chores, my exercise routine, my daily voice scales and guitar practice. My only concern now, was to focus  on my performance-ministering in God’s anointing. To people enduring catastrophic illness, outward, perfect beauty is the last concern. Our symptoms wear us out to the point that we can’t be concerned that our make-up is perfect. Anyway, my lipstick and mascara always smeared or wore off halfway into any activity. My face always ended up leaning on my hands as I tried to position my head and neck in a comfortable way. Such is dealing with an upper cervical-spinal issue. I felt peaceful as I faced the audience.
“I’m so blessed and thankful to be here tonight despite having a very difficult almost nine years struggling with Dystina-TMJ, a neurological disorder similar to Parkinson. I’m so glad to be here to encourage any of you who are stiffening with any kind of illness. No matter who you are, God cares about what you are going through. Indeed, His eye is on the sparrow and as He is attentive to a tiny sparrow falling to the ground, so much more so are you precious in His sight”

The strains of my guitar and voice filled the church and I felt at ease, hardly aware of any muscles neck spasms. It was amazing how relaxed I now felt,compared to the preceding hour of anguish in my neck. I knew it was all Him! At the end of His Eye Is on the Sparrow, I paused for a second.  My eyes swept across the people’s faces as they sat spell bound watching me and listening to my every word. My face softened and I said, “It is well. It is Well.”
I then felt a surge of strength and stated, “You know, no weapon formed against you shall proper and Satan is under your feet. Get a hold of that and decide to walk powerfully in God’s strength. The devil is under your feet!”

JACKSON BAPTIST Church concert June  5, 2016

The audience grabbed a hold of that one and I preceded to sing It is well. I was joyful to hear one of the drummers accompanying me and my performance came alive with God’s hope and victory for everyone who’d choose to believe that all is well because of Christ’s victory on the cross!

By the third verse, everyone was standing and joined in through the end of the song! The chorus…It is well, with my soul reverberated with the layered harmonies of many voices. It was a transcendent moment for me! Father God punctuated His daughter’s glorifying music performance with His healing presence.

As I left the stage with the applause still lingering, the wicked spasms came back with a vengeance and I told Mark and my friend I had to lay down. I rushed to our HHR car and rested, immediately feeling less pressure in my neck. After about a half an hour, I decided to go back in, in case there was anyone who wanted to talk with me or have prayer. I was immediately approaches by several people One tall lady in particular, grabbed my hand.

“Hello sister and what can I pray with you for?”I asked.

“I was so blessed…so blessed by your songs. ” She gushed with tear-filled eyes. ” I have Lupus and have been very depressed for a long time.” She went on to share a little of her story and then a pastor joined me as I prepared to pray over the sister. Quite a few more people approached me to hug me and shake my hand and then I felt weak with the excitement and challenge of the night. I retreated back to the car to rest.

As I meditate and chronicle this pivotal evening of my life, I ponder the mystery of my battle-journey.  This TMJ-Dystonia condition has affected me in so many ways, some bad, but mostly good. Anyone diagnosed with a chronic illness will first ask, “Why me, God?” Then they will become angry at the injustice of it all and then resign themselves, either to resentment-bitterness or they decide that they will fight back and make the best of it! I have chosen to be the victorer and make the best of this daunting trial and trust that father will get all the glory from it!l

My encouragement to anyone enduring a daily or terminal illness is to weight your thoughts, dreams, standards and hopes by God’s word and His living presence. The Bible doesn’t answer all the the Jobian mysteries of a catastrophic health condition. For me it’s been groping my way through a dark maze and then leaving the “out” door onto a terrain riddled with land mines. Failure and death lurks beside every mine and one wrong step could propel you into the cemetery of resignation. I’ve often asked myself why I forge forward in my research, knowledge of Biblical healing and preventative medicine, (natural healing) when I’m daily almost overwhelmed with these devastating muscle-neurological and bio-chemical abnormalities.

I’ve learned from Dr Caroline Leaf (brain scientist) about the utter complexity of how the brain and the nuero-transmitters react to stress and trauma. From her research I’ve gleaned amazing insight on the importance of learning, meditating and relying on God’s divine and superior knowledge. After all, He did create and fashion our bodies in the most unfathomable ways ways!

Coming from a background of extreme abuse (bullying and domestic violence) and suffering much rejection because of generational sins, and then being redeemed  and transformed by Christ’s Yashuha’s love and freedom, reminds me  of my vow to the evil powers that be, that I will never again live in bondage. Though these devastating symptoms threaten me each day to hold me captive, I’ve relied on God’s Holy Spirit to empower me with His all-abiding strength, resilience and the possibility of total healing-restoration! Who else can promise that? Neither doctors, nor the toxic drugs they push can promise the prefect healing of our physician, Christ the messiah whose very stripes enabled us to walk in restoration!

close up anita OG

I, for one, need nothing else, but Him. The irony of my health journey has been that my enemy has tried to silence me by afflicting the very tools of my ministry. A worship leader-psalmist-speaker’s mouth and voice are the instruments with which she/he expounds God’s healing words, promises and anointed presence. Only in God’s presence is healing, so my enemy has chosen to viciously attack me, ( in my neck, vocal chords, throat and jaw) so that he can shut me down and shut off God’s healing works through me!

Ten years ago, somewhat vivacious and passionately aspired to get signed and go on tour, I never would have imagined to join the ranks of the “disabled” population.  Any pride or self-reliance I had is now completely extinguished and I’ve been brought to the place of humble submission…total reliance on Him alone!. This is Father’s refining process for me. I’m on his potters’ wheel and He is shaping me to what he wishes me to be. (Now, I can’t say that I’m always still and yielding) but mostly, I trust that He knows what He is doing.

He is using a chosen instrument, not of my parents ilk. None of my parents were musicians, nether were any composers or played instruments! It has been a testimony for God to teach me how to play guitar and compose the beautiful Psalms he has given me. It will be seven years since beginning the recording of my album MOD PROPHET and then my worship CD,  The Anointing, His Presence. They are nearing completion, getting more polished and glorious with each song. I will not stop and neither shall my enemy stop my mouth from praising Him and teaching the world of His great promises and Love.

The songbird will sing!

 

A DAY in the LIFE of DYSTONIA, (Eight Years)


Eight years and counting…but trusting and believing that I am HEALED by Jesus stripes. I refuse to disbelieve that Christ also endured  the beating for Dystonia, Lupus, ALS  and PSP. These are all satanic attacks and I continue to declare my healing.

https://www.youtube.com/watch?v=sCo82bv5lRM

Dear Jim, my dear precious man, My heart goes OUT to you also. I’m a lovely gal whose life has been severely humbled and humiliated also. My struggle with mouth, tongue and throat Dystonia has been a living hell every waking moment. Others couldn’t imagine the heartbreak and anguish having to deal with CERVICAL issues which affect almost every area of our body’s and even the organs and brain neurotransmitter activity. Doctors DO NOT care about doing deeper studies on Dystonia because thy get their kickbacks from the DRUG companies. I for one CANNOT take drugs because my calling as an artist, worship leader, composer and journalist depends on my mind being high mental acuity. So my choice is suffering from great pain from a misaligned JAW joint (TMJ) to bitten my tongue til it bleeds and my lower face and mouth making the ugliest grimaces. For a woman, this is demeaning…so I’m housebound almost all of the week. the only time I get out is when I drive myself to my Chriro for my adjustment which does nothing to stop the facial movements. Driving is grueling because my nervous system reacts violently to the engine power, so my mouth goes Berserk!

This next video is about Sara’s battle with Dystonia (TMJ disorder) She’s another hero of mine and her symptoms are very similiar of what my body has suffered. Following is a list of her symptoms.  I highly recommend anyone enduring Dystonia to get a good MRI of your jaw area to see if your misaligned tooth bite is the problem. I tore my jaw ligament while singing a high E note while singing. I heard  something that sounded like a crack or tear and a week later, my problem started. Unfortunately, doctors and neurologists focused on the brain area and spine, but did NOT focus on the  jaw area:) Also consider any head trauma or car accidents . I pray my blog will open up some more areas for you to find relief for your Dystonia.

The following are Sara’s symptom

Secondary/Acquired Paroxysmal Dystonia moving to Generalised Dystonia, Dystonic Storms, Tremor, Teeth clenching, Migraines
Jaw pain, Temple pain left side, Neck Pain, Back Pain, Shoulder Pain, Low back pain, Headaches, Faint/Lightheaded, Concentration issues, Occasional stutter/slurring, Vertigo, Memory impairment, Hearing impairment right side, Balance problems, Chronic Fatigue
Visual disturbances, Light sensitivity, Sound sensitivity, Smell sensitivity and lack of smell, Ear ache intermittent, Dulling of hearing, Tinnitus (occasionally), Loss of taste (I was just adding lots of salt and didn’t realise!), Toothache, Breathing difficulties, Sinus issues, Snoring
Difficult to wake up/drowsiness, Weak muscles – especially arms/legs/ unable to easily hold phone or brush hair, Sharp and Chronic hand/finger pain, Fine motor control issues -writing/eating/DIY, Slowed movement/ability to move, Biting back/sides of tongue all the time, Sensitive teeth (sometimes), Raynaud’s Syndrome (cold feet and hands), Knee pain, Hip pain, Upper arm and upper thigh (lymph) pain

 

I give all glory and thanks to the Lord for ANY creative endeavor I attempt to finish, (my recording of my albums and my 5-part series book! the incessant & violent pulling on my neck and thraot muscles DRAINS any motivation out of me, so I’m constantly crying out to Father for strength. I pray that all my beloved ones, thank God everyday for being able to enjoy your relationship with your precious heavenly Father, Jesus & Holy Spirit. You have NO idea how much easier it is to life life hen you’re not in agony every waking moment. Thank Him everyday for your health and mobility. Many are disabled by DYSTONIA or suicidal. I give ALL thanks to my wonderful Father for helping me endure this daily cross.  all and Please be patient and compassionate to those who have disability. It’s twice as hard to KEEP your marbles together! blessings to you all!

 

Here is another young lady suffering from a TMJ disorder.